Specific Conditions

Baby Hayden Update – 28.5 Weeks and Counting

Baby Hayden Update – 28.5 Weeks and Counting

I have had multiple requests for me to write a blog post to update everyone on the current status of Stephanie and our baby boy. There are still a lot of unknowns, but here goes with everything that has happened since the last blog post, when Stephanie had the transplant in Philadelphia. Somethings have been […]

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Hyper IgM Syndrome and the Stem Cell Transplant

Hyper IgM Syndrome and the Stem Cell Transplant

Stephanie went back to CHOP around 2:00 pm today (Wednesday) and started with getting everything ready for the procedure. They started by removing the central line (crazy picture of that below… “graphic content” disclaimer implied for those that have trouble looking in a hospital room), and then brought out more consent to treat forms. I […]

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Hyper IgM Syndrome Stem Cell Harvest – Day 5

Hyper IgM Syndrome Stem Cell Harvest – Day 5

Today was the day that the stem cells were harvested. Over the last 4 days Stephanie has been taking her injections in order to stimulate stem cell development. and the preliminary blood tests indicated that things were going in the right direction. Since the concept of a “stem cell” may be foreign to some people […]

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